You ain’t seen nothing yet

I went to a very interesting meeting on London’s NHS IT last night, very informative, with an interesting point that at present the roll out has been of stand-alone systems. When these are connected up, as is the master plan so to speak, that’s when worries about who will have access to patient records will really take hold. The principle is that it’s based on your NHS work role, but that generally means you will have greater access to records than you really need. And it will be a hugely complicated system to administer and audit. If you think the sex offenders in schools was a tough one then go figure the challenges faced by one of the largest organisations in the world – the NHS. This is why training and education will be as important as physical security measures for records – soft systems as well as hard systems if you like.

On the plus side when the IT system implemented by Connecting for Health does connect up it will provide a national databank of great value to medical researchers – once the problems over data confidentiality have been sorted out!

Data death/data lives

Saw this report in today’s Guardian having just read the Connecting for Health 05/06 business plan. Surely if there’s one thing that would get the medical profession motivated about the benefits of C4H its that in a few years it will as a result (see Financial Times article on Monday) in an unparalleld national dataset on patient health which can be mined? But that opportunity will be wasted if the bureaucracy issue is not sorted:

“Tens of thousands of lives are being lost every year in the UK because medical researchers are hampered by bureaucracy in obtaining patient data, according to scientists. A report published yesterday by the Academy of Medical Sciences said that large population-scale medical studies are in jeopardy because of an “undue emphasis on privacy” by regulators.”